Patients living with Wilson disease — a rare genetic disorder that prevents the body from properly eliminating copper — face a lifelong care journey made harder by fragmented systems that were never designed around their lives.
To address this, we partnered with AstraZeneca to establish a Design Lab focused on reimagining how rare-disease care could work if it were designed today.
The work resulted in a comprehensive care concept spanning a mobile experience, wearable integration, and AI-driven support — unified as a proactive healthcare concierge that anticipated needs, reduced daily burden, and stayed connected to care teams.
In parallel, we created a visual storytelling system grounded in the symbolism of copper and the fragmentation patients described. A global network of photographers captured real moments across diverse lives and circumstances, which were brought together through short-form animations designed for social, events, and internal use — reinforcing a sense of continuity and dignity.
Although the program did not move into production following an acquisition, the work established a new model for designing rare-disease care: modern, personal, and continuous.
Established a new digital care model for rare-disease patients and families







